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The Child
With Cerebral Palsy
The most often asked questions
by parents whose child has been diagnosed with
cerebral palsy (CP) involves concern and anxiety
about their child’s future. The parent’s of
children with CP face many challenges, including
emotional and physical demands. Like any parent,
those of children with CP will find that optimism
blended with realism is the best approach to raising
any child. With support, assistance, extra time and
accommodations, most children with cerebral palsy
can enjoy a full and active life. Welcome to Holland
was written by Emily Perl Kingsley to explain one
parent’s perspective on having a disabled child.
Cerebral palsy is
caused by abnormalities in the fetus’ developing
brain, or from injury sustained during the birthing
process or soon after. Those with CP are unable to
control or move their muscles in the normal way and
experience effects that can range mild to moderate
to severe. Mild CP may mean the child is clumsy,
while moderate CP may cause the child to walk with a
limp. Severe CP can impact all of the child’s
abilities including learning, sensory problems,
speech difficulties, bladder and bowel trouble and
eating problems. The severity level of cerebral
palsy is in correlation to the injury to the brain.
When an infant or young child is diagnosed with a
disability, their family's lives are forever
changed. Meeting the challenges of a disability
requires families to draw upon their inner strength
and the support of other family members,
grandparents, relatives, friends and co-workers.
Equally important are the support and services that
the family and child receive from educational and
other social service agencies. There are mandated
services for children with disabilities from their
birth to age 21 under the Individuals with
Disabilities Education Act (IDEA). IDEA was designed
to enable children with disabilities to become
productive members of society by equipping them with
educational and social skills to help them reach
their maximum potential. At specific milestones in a
child’s life, state agencies work with other
professionals and the child’s family to develop
and implement an academic plan to help transition
the child into the mainstream.
Your Child Is The Same – Just Different
The brain’s ability to adapt to new ways of
working after an injury is amazing. Infants with
cerebral palsy are often more slow to reach
developmental milestones such as rolling over,
sitting up, crawling, walking and talking. However,
many of these children learn how to make their
bodies work for them in other ways. For instance, an
infant unable to crawl due to CP may learn how to
move around by rolling from place to place.
For babies with CP, exercise is more challenging
because of their limited ability to move. However,
exercise with the full range of motions is critical
to preventing contractures or joint limitations.
Weight bearing exercises help to decrease bone loss
and sensory or motor input exercises contribute to
the development of the child’s cognitive skills.
An exercise program can be incorporated into a
parent’s daily routine through activities such as
diapering, dressing and feeding. A child’s
occupational and physical therapists can provide a
number of useful tips to engage your child in
physical and cognitive exercise.
Parents should also incorporate outdoor
activities into the exercise routine since it
becomes increasingly important to stimulate the
child’s sensory system. It also provides the
parent with an opportunity to “stop and smell the
roses”. For older children, exercise often comes
in the form of play. The touch and movement
associated with play are important to normal tactile
(touch) and vestibular (response to movement)
systems. When engaging in any activity, it is
important for the parent to be cognizant of their
child’s needs and limitations.
Some children with CP participate in formal
physical fitness programs or gym classes. Physical
therapy, occupational therapy and speech-language
pathology all help a child to develop stronger
muscles, as well as refine motor and communications
skills. In addition to therapy, special equipment
and technology is available to support the unique
needs of a child with CP. Splints can help a child
move and use their hands, while braces support the
child as the stand or walk.
With early and continued treatment, CP’s
effects can be managed and reduced. Surgery, Botox
injections and other medications can help to
decrease the effects of cerebral palsy and new
medical treatments are being researched and
developed. There is also support available from
physicians, therapists, psychologists, educators,
healthcare and social workers who are committed to
working with children with CP.
Cerebral palsy clearly presents hurdles to both
the family and their child. Particularly stressful
milestones include the diagnosis and conflicting
emotions it brings, transitioning a child of school
age into specialized education, and adjusting to the
social and physical turbulence of the adolescent
years. As parents age, they may face a new set of
concerns regarding their child’s future. However,
with support, care and love, the family facing
cerebral palsy has many opportunities for happiness
and success.
Your Legal Concerns
While most doctors, nurses, midwives, and hospital
technicians provide a high standard of care for
their patients, unfortunately, many families are
harmed by medical mistakes. A physician may have
misread fetal monitoring equipment, failed to
diagnose fetal distress during labor, waited too
long to perform a C Section, administered too much
Pitocin, or failed to act in a timely manner.
Parents of a child suffering with cerebral palsy
should contact an
experienced cerebral palsy lawyer to research
the cause of their child’s condition.
For a FREE Online Case Evaluation,
click
here.
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